does anyone here suffer from m.e. (chronic fatigue syndrome)

donkeyplop

hi ive just been diagnosed with m.e. ive been feeling bad since last april and its taken until now to get it confirmed! (good old nhs!)

im getting frustrated as ive had no answers or help on what i can do to make my life easier as its not great right now!! ive been signed off for 6 weeks and seem to be getting worse.

any advice would be much appreciated cheers.

Sky_Rich

Hey there donkeyplop,

i'm really sorry to hear about your news.

i can't and won't pretend to be 100% clued-up on M.E. but i do know someone else in a similar situation to yourself.

My girlfriend's best friend was diagnosed a few years ago and although there are spells where she doesn't feel great she is looking and feeling really healthy right now.

she is really active and is always off traveling around, seeing new things and meeting new people. only this summer she travelled around Italy and even did a spot of Croatian island 'hopping'.

sorry i can't offer much more advice than to say that things will get better and you will feel better.

if i can help you in any way or you need anything at all - just give me a shout.

all the best,

Rich

rubadub

In Response to does anyone here suffer from m.e. (chronic fatigue syndrome):
[hi sorry to hear this only ever come across it when looking into chronic rhuematoid arthritus there are some similiar symtoms e.g immune system on overdrive  the only advice i can give you is please when seeing doctors and specialists dont play it down when they ask how you feel tell them in as much detail as possible keep a diary you will forget things between visits write down questions you want to ask take it with you it may not be much but a nurse gave my wife this advice 20yrs ago and although it didnt help the pain it helped getting through the nhs system hope you find the help you need

rubadub

In Response to does anyone here suffer from m.e. (chronic fatigue syndrome):
hi  heres the number for the m.e association 08704441836 hope this is of help stay possitive you can check them out on internet i found them googling nhs support

donkeyplop

ok thanks for the replys!!

ive been getting down recently as i cant see a light at the end of the tunnel!!

i was very frank and open when i visited the specialist last week.

the ilness seems to affect people more who are into sports and fitness which i was well into.

thanks for that phone number i will give them a ring somewhen this week.

rubadub

In Response to Re: does anyone here suffer from m.e. (chronic fatigue syndrome):

ok thanks for the replys!! ive been getting down recently as i cant see a light at the end of the tunnel!! i was very frank and open when i visited the specialist last week. the ilness seems to affect people more who are into sports and fitness which i was well into. thanks for that phone number i will give them a ring somewhen this week.
Posted by donkeyplop

your welcome hope it does some good when you feel up to it do check out the internet i did find some sites by m.e suffers giving their account of the condition and their tips hope you see the light again soon